2013) Within their final sample (n = 1,041), the majority who ch

2013). Within their final sample (n = 1,041), the majority who chose to complete surveys were over 40, female, white, had a degree or graduate degree, were married and had children. Cherkas et al. (2010) gathered British attitudes towards personal genome testing from 4,050 members of the public. Their survey was distributed to a convenience sample of twins participating in the TwinsUK Adult Twin Registry, who had been ascertained from the general population. The mean age of participants in the study about genetics

was 56, 89 % were female, 79 % had children and the majority PLX4032 in vivo were of higher socio-economic status (Cherkas et al. 2010). Morren et al. (2007) explored attitudes towards genetic testing amongst patients with chronic disease in The Netherlands. The survey was mailed to a nationwide representative sample of patients with chronic disease and returned by 1,496 participants. Within the final sample, the majority of participants BGJ398 were over age 45, 58 % of them were female, 75 % married/cohabiting and 54 % had an ‘intermediate’ or ‘high’ level of education (Wilde et al. 2010). Whilst there are clearly numerous research projects on attitudes towards various issues in genetics that have been particularly focussed on gathering the views of men (Quinn et al. 2010), certain ethnic groups (Murphy and Thompson 2009, Ahmed, Ahmed et al. 2012) and specific ages of people (Donnelly

et al. 2013) these are by far in the minority of the whole body of published work available. When exploring the literature on the profile of nonresponders to surveys, an interesting Faculty paper was uncovered from William G Smith (2008) at the San Jose State University. Smith summarises the literature on the typical profiles of people who take part in survey research (Smith 2008). He showed that generally people who are educated and affluent are more likely to take part than less educated and less affluent people (Curtin et al. 2000; Singer et al. 2000;

Goyder et al. 2002); women are more likely to participate than men (Curtin et al. 2000; Singer et al. 2000; Moore and Tarnai 2002) and white people are more likely to participate than Glutamate dehydrogenase other ethnic or racial groups (Curtin et al. 2000; Groves et al. 2000). Therefore, the convenience and snowball sample that we have obtained via the three recruitment strategies broadly fit the samples that have been recruited for other research on genetics. The sample also fits with the profile of respondents who generically respond to recruitment invitations to participate in social sciences research. Separate publications will follow that will explore how socio-demographic data are linked to attitudes towards sharing incidental findings from genomics. Future social science research on genomics could very usefully employ selective sampling frames that specifically target non-white audiences, men, as well as people who have lower educational achievements and affluence.

Comments are closed.